Prayers for full recovery are working!

Today is a great day! Today I saw my son walk for the for the first time since we they found the infection and did his emergency surgery. It's a indescribable feeling to see your child of 17 years regain his life back one step at a time.

It's Mornings like these!

So life around here never really slows down, we are still fostercarers, and the kids we have in our home while adorable have several behavioral challenges. Today we woke up to find a master piece awaiting us.....master 3 had got up extra early and decided that not only should he brush his own teeth, but also our upstairs couch, his Thomas the tank engine track and friends. all in the day and life of our family!

Locky Moves to the spinal Rehab Unit

Today was stressful but good, Locky was moved to the spinal unit at the Princess Alexandra Hospital. He was transported by ambulance and we followed. Our first impressions where great, the staff was friendly and comforting. Locky is doing okay just a bit overwhelmed.
He was fitted for a wheel chair so he can get around the unit and it was awesome to see how much the encourage independence.
It was hard to leave tonight but we are all going up tomorrow and going to explore the grounds and gardens

I Choose Joy

Today I got an email notification from Lil Blue Boo, an awesome blog I follow and today I got it, I got what she is saying, life is too short, choose to be filled with joy rather than regret, anger and why us!, well that is what I get from her blog. 

I started following Ashley's blog about a year ago, it was before her life was turned upside down by the Death of her father, her miscarriage and then the discovery she had Cancer and would need a emergency hysterectomy to save her life. Her life is now days of Chemo and Hospital visits. BUT Ashley decided from day one to CHOOSE JOY  cherish every moment with her precious daughter, her husband and her amazing family and friends...and it wasn't until today that I decided I could be angry, and feel sorry for our family or I can make a choice to CHOOSE JOY, SO I am making a decision to choose JOY. NO matter what the future brings my precious son, No matter how hard it gets, how frustrating or how sad I feel for my child.......I AM GOING TO CHOOSE JOY just as Ashley has. Ashley shares her life, her love of her family and her amazing DIY projects on her blog daily so be sure

to check her out and why not CHOOSE JOY too.

LOCKY update Day 9 and 10

Its nice to know that I have a few people following my rambles.

Day 9 - After talking with Locky and knowing my Mum and Brother where going to the hospital we decided to spend our last day at the camp site packing and letting the younger kids have a bit of fun. We talked with Locky all day via text and calls. Locky had a good day but the Dr wanted a MRI(of his spine) with contrast and Locky was unable to drink the contrast, so it was delayed till today. My Mum, Brother and his family all visited with Locky and he was able to con my Mum in to buying him KFC on the way up to the Hospital, SO I think that is a sure sign of his hunger is returning. Although I have to say I can't blame him for not eating the hosptial food.....by gosh its awful, the smell alone turns my stomach let alone the sight of it.

Day 10 - More frustration but then some peace. After packing up and leaving the Campsite and heading towards home we got a call from Locky telling us that a couple of Dr from the PA(the spinal rehab unit) had visit him and advised him that he was now on their waiting list, they discussed things with him and basically said that things have been decided he was going there.

I was so angry and frustrated at this, we had no warning they where coming nor had we given permission as his parents for them to come and talk with him. The lack of communication is just awful, its not that we aren't considering this place as a option because we are, it is the number one leading Spinal Unit is our state, some would say Australia, its not them, it's the total disregard of us as his family and the needs of Locky in that he might want his parents with him when such a thing was being discussed that bothers us the most.

I had some frustrating converstations with the shift nurse but, then was able to get onto the ward Social worker and really felt that we have finally been heard and Tony was able to get a full update tonight and clarify a few things with a more senior medical Dr and our concerns where also addressed with the Nurse in Charge on the ward. We are not concerned about Lockies actual nursing care its fine, its just the communication with us that is lacking.

I was also able to talk with the Dr from the PA this afternoon and I was able to clarify many issues and have some concerns addressed, we feel now we are able to make a informed choice as a family as to what Locky needs to regain his life.

Several people have asked how Locky is going "really", its hard for us to really gage this, yes he has movement in his feet but he has NO feeling from the belly button down, until we got thrown into the world of spinal injury I didn't even know that was possible. Offically Locky is now classed as a incomplete Paraplagic, he can move but he can't feel, he can sit but he can't stand or walk. He will have a long recovery, and we have been told that he may not regain what he has lost. If he does regain what he has lost it will be a miracle and YES we believe in Miracles.

Locky also got his first(and hopefully last) wheel chair today.........I am still struggling with how I feel about that, so I can only imagine how Locky feels......

Locky Update day 8

I can't even tell you how amazing it was to hear my son tell me he can lift his right leg. He is regaining some movement each day but the numb feelings to both legs and feet remain and he has no control of his bladder or bowel because of this, We have been told this should return eventually. 

Locky is in good spirits especially after he had a day of visitors, one of his friends, his teen cousin and my husbands parents.

I forgot to take a pic today while I was chasing his Dr for a update, I really hate how they are not keeping us up to date on what is going on. Its so frustrating that they are making decisions for him without us, ordering wheelchairs, making arrangements for him to go to another hospital without even so much as consulting us. 

Dealing with the lack of a control Tony and I both have over this situation is so very frustrating.....we are beyond upset and being send a first year Dr when we requested to see the specialist yesterday did nothing to help us feel better about things.

I am happy that they are telling Locky things, but mostly he has little understanding of what they are telling him, its a new world to him, and he is still getting his head around things.

Tony and I have been spending HOURS on the internet researching Spinal rehab options for Locky, we are lucky our private health insurance allows Locky some options in regard to rehab.......there are several little know amazing facilities on the Sunshine coast, one in Brisbane and then the option that they are suggesting. We need this to work for everyone......its easy to say that we should just drop everything as a family and worship the option that they(the hospital and Dr) are suggesting but the truth is after doing the research that we have its not our number one option. I am willing to hear them out, but we also are considering other places too.

This is one of the hardest things our family has faced, Locky and all of us are coming to terms with a new normal……

Wonderful new Newborn Actions for PS

 You have to go check out the new Newborn action set that MCP is developing and while you are there be sure check out the rest of their awesome actions and fab tutorials. http://www.mcpactions.com/blog/